From caringbridge: We made it home around 8:30 last night. I was a crying fool by the time we hit the drive way. Tears of joy ......a bit nervous about being home without medical support here.......but mostly from being overwhelmed by the notion that our Lord gave us more time with Jacob. He had given Jake the strength to pull through this.......when we flew out in lifeflight 16 days ago....we were really unsure that we would return with him. It was heartbreaking.....but when we pulled in the drive the emotions broke loose.....we were bringing him home .......knowing the Lord had heard all of the prayers of petition health and return. The prayers of so many heard and answered in His time and in His way. The reception we received was amazing.......meals .....flowers......house spotless ......groceries ........so many blessings from our family and friends. There are too many to name for the help and love you have given us. I really just have no words to describe the love we feel for all of you. So after tears had faded.....the joy of being home turned to work.....getting everything in place for the night with Jacob. Medications, suction, feeding pump set up.....cough assist, suction again, oral care, then bipap...... Jake was exhausted and asleep...and Terry and I we like new parents with a newborn......listening for each breath ......wanting to watch every rise and fall of his chest to make sure he was breathing right. Praying to God that He would take this uneasiness of being home this first night. Everyone eventually tipped over from fatigue. I woke up about 3 to check on him... and from there we were pretty much up. He tried several times to get comfortable but it was a loosing battle. Today we have been getting things back to normal working on appointments and follow ups. It will be a day at a time and we know it is a road ahead.....but we are so happy to be here......be home!
