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A little Bobcat needs some help

MTCowpoke said:
Paytonlives said:
Please an update...

The wife heard from Ty’s sister that Lyam did make it through the procedure. He is stable, but still very critical. For now he’s holding his own, but that could change at any moment. The doctor is calling it day by day, which is an improvement from “hourly” right after the procedure. What really sucks is that in all the pictures they share, he’s always very alert and attentive. He’s very much there and ready to be the little boy he should be, if only his heart and kidneys could support his body the way it should.

Thanks so much for these updates. Please let us know if there’s anything we can do for this family right now. In addition to prayers of course!
 
Lyam’s procedure did work and relieved the pressure the infection caused. He will survive his second Christmas! However, now he has a hemotoma pushing on his stomach. He needs to be able to feed to continue to heal and grow, so tomorrow they will try a MRI and possibly a ultrasound to guide a needle to the hemotoma so they can ease the pressure there. It is very risky as he’s on a heavy dose of blood thinners due to being on ECMO. Any bleeding caused will be very difficult to stop.
 
MTCowpoke said:
Lyam’s procedure did work and relieved the pressure the infection caused. He will survive his second Christmas! However, now he has a hemotoma pushing on his stomach. He needs to be able to feed to continue to heal and grow, so tomorrow they will try a MRI and possibly a ultrasound to guide a needle to the hemotoma so they can ease the pressure there. It is very risky as he’s on a heavy dose of blood thinners due to being on ECMO. Any bleeding caused will be very difficult to stop.

Hard to even imagine what the little dude and his parents are going through... :cry:
 
Prayers for the tough guy.

I'm in Gainesville. If there is anything I can do for the family, no matter how random or small, please, please, please let me know.
 
So, things have taken another turn in Florida. They did not attempt to drain the hemotoma on the 26th. The doctors were concerned that if it was blood, they would not be able to stop the bleeding if it was punctured to relieve the pressure. And the pediatric surgeon on duty was not willing to intervene to stop the bleeding. So, instead they inserted a feeding tube through his nose, past his stomach to the intestines so that he can be fed. However, yesterday he started puking. X-rays show that the mass on his belly has grown and is pushing on all of his bowels. Due to the fungal infection, he has no skin, fat, or muscle covering a large part of his belly, and the mass is pushing his bowels out through the incision wound. After many discussions with all doctors involved, they decided they have to drain the mass. He could still bleed out, but the current ped surgeon is willing to do whatever he can to stop it. Today, the radiologist was successful in draining over 300ml of fluid out of the mass. He is still fighting the fungal infection, which is very invasive, and seems to still be spreading. They cannot determine where it is or how it is spreading. As of now, he is not a candidate for a heart transplant, and he may possibly never will be due to the infection and the damage done to his digestive tract. At this point, they are giving him a 5% chance of beating this. For now it is day by day and hour by hour.
Needless to say, things have gone from bad to much worse in a hurry. Lyam is still with it mentally, although very sleepy, but his body is not going able to keep fighting for much longer unless this infection gets under control. I will say he has lost a lot of weight and the pictures Ty and Jyll are sharing are very startling compared to what we saw before Christmas. They aren't asking for anything beyond continued prayers.
 
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